Position Paper: Cornerstones for an ethically and legally informed practice of whole genome sequencing: code of conduct and patient consent models. (2nd edition)

Claus R. Bartram, Roland Eils, Christof von Kalle, Hanno Glimm, Paul Kirchhof, Jan Korbel, Andreas E. Kulozik, Peter Lichter, Peter Schirmacher, J.-Matthias Graf von der Schulenburg, Klaus Tanner, Stefan Wiemann, Eva Winkler, Rüdiger Wolfrum, Sebastian Schuol, Christoph Schickhardt, Grit Schwarzkopf, Fruzsina Molnár-Gábor, Gösta Gantner, Martin Frank, Anne Prenzler

Abstract


Developed by scientists from different disciplines the position paper “Cornerstones for an ethically and legally informed practice of Whole Genome Sequencing” was published in a second, updated edition. The first edition published in 2013 already contributed to a critical discussion of the ethical and legal issues raised by whole genome sequencing, both in the public media and in the academic community. The position paper, which in its new edition considers the latest developments in the discussion, emerged from the project "Ethical and Legal Aspects of Whole Genome Sequencing" (EURAT) located at the Marsilius Kolleg of the Heidelberg University.

Schlagworte


whole genome sequencing; ethics; legal aspects

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DOI: http://dx.doi.org/10.11588/fmk.2015.0.30243

URN (PDF (English)): http://nbn-resolving.de/urn:nbn:de:bsz:16-fmk-302438

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